In this article, we look at dementia support groups UK. Dementia is a term used to describe loss of memory, problem-solving, language, and other thinking abilities.
It is not a single disease, rather it is a syndrome that is caused by several diseases that affect the brain.
Dementia Support Groups UK
The most common cause of dementia is Alzheimer’s disease, and it accounts for roughly 60% of dementia cases. Other causes of dementia include Lewy body dementia, frontotemporal dementia, vascular dementia, and Parkinson’s disease dementia.
The prevalence of dementia in the UK is around 850,000 people. This translates to 1 in 4 people above 65 having dementia. This number is said to increase to over 1 million by 2025.
While there is no known cure for dementia, there are treatments that can help to manage the symptoms and improve the quality of life. Some of these treatments include lifestyle changes, medication, and therapy. Below are some dementia support groups UK:
Alzheimer’s Society (National)
A UK-based nonprofit organization called The Alzheimer’s Society offers assistance and care to dementia patients and the individuals who look after them.
While its sister organizations, Alzheimer Scotland and Alzheimer Society of Ireland, serve Scotland and the Republic of Ireland, respectively, the organization operates in England, Wales, and Northern Ireland.
The society provides a variety of programs to assist those who have dementia in making the most of their condition.
There are almost 3,000 local services offered across England, Wales, and Northern Ireland, as well as publications that provide advice and support, a national dementia helpline, and these services.
The organization also provides funding for studies into the causes of dementia and potential remedies.
Website: www.alzheimers.org.uk
Dementia UK (National)
Through its Admiral Nurse service, the UK-based organization Dementia UK offers specialized dementia support for families.
Specialist dementia nurses known as Admiral Nurses offer emotional and practical support to families of people with dementia. All dementia sufferers in the UK have access to free services provided by Dementia UK.
Anyone touched by dementia, including family members, professional caregivers, persons with dementia, and anyone concerned about their memory, can receive emotional support and practical assistance from Admiral Nurses.
Admiral Nursing Direct, a national helpline and email service, offers the service. The helpline is manned by knowledgeable Admiral Nurses who can offer free, knowledgeable counsel and compassion to assist you in caring for your loved one and navigating the difficulties of day-to-day dementia life.
Website: https://www.dementiauk.org
Dementia Adventure (National)
A UK-based nonprofit organization called Dementia Adventure offers services and assistance to those who have dementia and their families. The company provides a variety of services, such as dementia support, training, and vacations that are suitable for those with the disease.
According to Dementia Adventure, persons with dementia can carry on doing the activities they have always loved, including going outside, staying active, staying in touch with friends, family, and their community, and maintaining a feeling of adventure in their lives.
The organisation offers completely funded vacations so that persons with dementia and their loved ones can spend time together. To help people think differently about dementia, they also provide a variety of dementia training programs for friends, family, volunteers, employees, and organizations.
Website: dementiaadventure.org
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YoungDementia UK (National)
A nationwide nonprofit organization called YoungDementia UK offers assistance to persons with young-onset dementia, their families, and friends.
It is an online group of people with the mission of empowering people with knowledge and information in order to better their lives.
The Young Dementia Network is a cooperative network that aims to effect major change that will continue to be advantageous in the future.
A type of dementia that affects adults under the age of 65 is known as young-onset dementia. Dementia UK estimates that 7,5%, or 70,800, of the estimated 944,000 persons living with dementia in the UK, have young-onset dementia, which means that the onset of symptoms happens before the age of 65.
Website: https://www.youngdementianetwork.org
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DEEP – Dementia Engagement and Empowerment Project (National)
The Dementia Engagement and Empowerment Project (DEEP) is a network of dementia-related groups that spans the entire United Kingdom.
The organization brings together over 80 groups of dementia sufferers to exchange experiences and offer support to one another.
Some groups initially get together for companionship and support, while many grow involved in dementia campaigns and awareness-raising. The project seeks to change the services and regulations that have an impact on dementia patients.
Website: https://www.dementiavoices.org.uk/about-deep
Lewy Body Society (National)
Lewy body dementia, the second most prevalent form of neurodegenerative dementia in older persons, is the focus of the UK-based organization The Lewy Body Society.
The organization was the first Lewy body dementia charity established in Europe and was launched in 2006.
The Lewy Body Dementia Society offers assistance to those who have the disease, their families, and caregivers, as well as to medical professionals and researchers. They also raise money to support research on disease treatments and potential cures.
Website: https://www.lewybody.org
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Alzheimer Scotland (Scotland)
Alzheimer Scotland is a nonprofit organization in Scotland that offers assistance and knowledge to those who have dementia, their family members, and caregivers.
They also support critical dementia research and advocate for the rights of people with dementia.
Website: https://www.alzscot.org
Dementia NI (Northern Ireland)
Dementia NI is a membership-based group that helps Northern Ireland’s dementia patients live well and influence change. The Northern Health and Social Care Trust provides information on dementia, such as its signs, causes, and available treatments.
Over 20,000 individuals in Northern Ireland currently have dementia, and by 2040, the number is expected to quadruple, according to the Northern Health and Social Care Trust.
In Northern Ireland, the Alzheimer’s Society seeks to enhance the assistance and care given to those with dementia and develop communities that are dementia-friendly.
Website: https://www.dementiani.org
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Alzheimer’s Research UK (National)
Alzheimer’s Research UK is a nonprofit organization that supports research to discover ways to treat, cure, or prevent all types of dementia, including frontotemporal dementia, dementia with Lewy bodies, vascular dementia, and Alzheimer’s disease.
They have a strong faith in the ability of research to build a future free from dementia’s fear, pain, and heartbreak. They support cutting-edge research that will significantly improve people’s lives both now and in the future.
They conduct research through some of their cutting-edge research networks and partnerships, and they have interesting huge undertakings.
Additionally, they offer reliable, current, and evidence-based information regarding dementia that has been accredited. On their website, you can find out more about their research and how they conduct it.
Website: https://www.alzheimersresearchuk.org
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Dementia Support South Lincs (East Midlands)
The Deepings, Stamford, Bourne, and nearby villages in South Lincolnshire are served by the charitable organization Dementia Support South Lincs, which offers assistance to those suffering from dementia of all sorts as well as their family.Â
They arrange frequent social meetings like day trips, outings to concerts, pub lunches, and events in addition to providing emotional support, one-on-one guidance, and information.
Their highly skilled Dementia Support Workers concentrate on the person who is suffering from the disease and seek to uplift, inspire, and encourage persons in South Lincolnshire who are living with dementia.
Website: https://dementiasupportsouthlincs.co.uk
Dementia Concern (West London)
Charity group Dementia Concern offers assistance to those with dementia and their caregivers in the London Borough of Ealing. Their goal is to always be the most dependable, committed, and individualized dementia charity in London.
They provide a number of services, such as Call and Care home care for those with dementia and their caregivers, Carers’ short breaks, Community support workers for those with dementia who live alone, Dementia advisor service, which offers advice, information, support, monitoring, and client representation for those with dementia and their caregivers, Dementia link workers for those taking medication who are having cognitive difficulties, their caregivers, and their families, and So.
The address of Dementia Concern is 223 Windmill Road, Ealing, London, W5 4DJ. The closest train stations are Syon Lane and Ealing Broadway. It takes 30 minutes to walk to Ealing Broadway.
The E2 bus departs from Ealing Town Hall. It takes 30 minutes to walk to Syon Lane as well. Local bus routes: E2, 65, 3. Parking is not offered on-site.
Website: www.dementiaconcern.co.uk
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Dementia Oxfordshire (Oxfordshire)
The Oxfordshire County Council employs community-based dementia advisers and support staff that can offer specialized knowledge, counsel, and assistance to persons living with dementia.
You can get referred to them by your doctor, district nurse, memory clinic, or another expert service.
In collaboration with Dementia UK, Age UK Oxfordshire offers it as a free service. From the time of diagnosis on, they offer assistance, guidance, and support to those with dementia and those who care for them. They are not released until they pass away or enter a care facility.
Website: https://www.dementiaoxfordshire.org.uk
FAQ
What support groups are there for dementia?
The Alzheimer’s Society is a prominent dementia charity. All illnesses that cause dementia, not simply Alzheimer’s disease, are covered on its website.
Additionally, it offers guidance on how to live with dementia and where to look for local resources for support.
What support does Dementia UK offer?
Their specialized nurses, known as Admiral Nurses, offer families free guidance, understanding, and support as they care for a loved one.
Their specialized, life-altering care, provided by dementia experts, aids families in navigating the anxiety and bewilderment of the disease.
How do you keep a dementia patient happy?
Maintaining a healthy level of activity and engagement is advantageous for a person’s physical and cognitive well-being if they have dementia or Alzheimer’s disease.
Some of the activities that have been shown to be beneficial for people with dementia or other cognitive impairments include exercise, outdoor activities, games, music, and art.
